"I had Wilms' tumor, too!"

Since beginning this web page, I have received many emails from Wilms tumor survivors, and the families and friends of current or former patients. I list many of them here in order to encourage those who come here looking for hope. Only the first names and date and age at diagnosis are given, to protect their privacy, except where they have a web site of their own.

Long-term Survivors

Joan - 1947 @6 months Carolyn - 1950 @5 years Susie - 1952 @6 months Pat - 1954 @21 months Bernice - 1956 @3 years Bren - 1956 @11 months JoAnne - 1956 @7 years Charmayne - 1957 @3 years Nina - 1959 @8 months Mitchell - 1960 @5 days David - 1961 @3 years Marylou - 1962 @5 years Michelle - 1962 @3 months Laurie - 1963 @? Janice - 1964? @17 months David - 1966 @4 years Karen - 1966 @6 months Christine - 1967 @3years Donna - 1967 @14 months Birgitte - 1967 - 10 months Randy - 1968 @10 years Emily - 1968 @6 years

Tim - 1968 @2 ½ years Charlene - 1969 @8 years Lori - 1971? @4 years Allison - 1971 - almost 3 years Julie - 1971 @? Fran - 1972 @17 months Bob - 1972 @1 year Saskia - 1974 @5½ years Julia - 1974 @2 years Lisa - 1975 @12 years Heather - 1975 @2 years Dawn - 1976 @2 years Rick - 1977 @? Heather - 1977 @5 years Kelly - 1977? @2 months Kelly - 1978 @4 years Jenifer - 1978? @ almost 2 years Luann - 1979 @13 years Amy - 1980 @18 months Kristin - 1981 @3½ years Matthew - 1981 @3 years Lisa - 1981? @12 years

Maggie - 1981? -age 2 years Joseph - 1984? @2 years Valerie - 1986? @3½ years Karen - 1985 @2 years Danielle - 1987 @4½ years Kyle - 1987? @3½ years Becky - 1988 @6 years Tom - 1990 @9 years Brandon - 1990 @5 years Vinni - 1991 @2½ years Emily - 1994 @2½ years Brandon - 1995 @2 years Kate - 1995 @18 months Matthew - 1995 @1 year Katie Jean - 1995? @? Elizabeth 1996 @6 years Shannon -1995 @2½ years Caleb - 1996 @2 years? Lucas - 1996 @? Jade - 1997? @7 years Katie - 1997 @6 years Lauren - 1997 @2 years

Current or Recent Patients

Emma - 1998 @4 years Burcu - 1998 @3½ years Toria - 1998 @3 years Brooke - 1998 @3 years? Brandon - 1999? @15 years Jennifer - 1999 @5 years Danny - 1999 @4 years Caitlin - 1999 @3 years Annie - 1999 @2 years Andy - 1999 @20 months Allison - 1999 - age 16 months

Luke - 1999 @1 year Tanner - 1999 - infant Charity - 2000 @3 years? Hunter - 2000 @2 years Hans - 2002 @2 years Lauren - 2000 @2 years Luke - 2000 @1 year Charity - 2000 @? Rita - 2001 @7 years Taylor - 2001 @5 years Angel - 2001 @5 years

Iman - 2001 @3 years Jay - 2001 @3 years David - 2001 @3 years Katie - 2001 @2 years Elliott - 2001 @2 years Caleb - 2001 @11 months Daniel - 2001 @6 months Katie - 2002 @5 years Hunter - 2002 @3 years Elisa - 2002 @14 months Katie - 2002 @2 years

Precious Memories

Debbie - 1992 @8, d-1983
Hunter - 1995 @5 years, d-2003 - Read his story and be encouraged and uplifted!
Paige - 2000 @4 years, d-2001 - The Paige Nicole White Pediatric Cancer Foundation: This non-profit foundation was created in memory of 5½ year old Paige White who lost her life to Wilms' tumor. The purpose of this foundation is to raise and distribute funds to various pediatric cancer research projects and hospitals. Funds may also be used to aid families in need whose child is undergoing cancer treatment.
Lowri - 2001 @3 years, d-2002 - Lowri's Pages

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Other Web Pages About WT Patients

 • POKWC (Parents Of Kids With Cancer) - personal stories
 • CancerKids.com - Kids with Cancer - personal stories
 • Cancer Kids - "Helping Children with Cancer Tell Their Stories to the World!" - Wilms Tumor stories
 • Stories and Faces: Wilms' Tumor (Pediatric Oncology Resource Center)

Personal Stories and Cancer Experiences

 • The Little Boy - a childhood cancer survivor opens his soul and reveals how his cancer treatments affect him now, years later.  (used by permission)
 • Against the Odds: The True Story of Michele, A Cancer Survivor - book review

Do YOU have a Wilms' tumor story to tell?

As an older Wilms' tumor survivor, I sometimes wonder who else is out there with a story to tell.  If you've lived long enough to become an adult, and would like to share your story with others, or the story of a family member or friend, please e-mail me!  I will link your web site here, or create a page for you if you don't have your own site.  I'd like to know not just your Wilms' tumor experience and the year of onset, but any long term effects you've experienced, and how your life has been since your treatment... and maybe a picture or two? Write to me, and I'll be glad to work with you.

Wilms' Tumor Links

 • National Wilms' Tumor Study Group

 • Children's Cancer Web - The Wilms' Tumour Page
Includes "Resources for Parents and the Public", "Home Pages of Children and Families" and "Resources for Health Professionals and Researchers"

Other Helpful Sites

 • the Never-Ending Squirrel Tale Web Site
"--the place to come for practical tips and encouragement for the parents of kids with cancer. It's written by other Moms and Dads in your shoes -- the ones that have already started the journey. Poke around and see what we have to offer. Share your story and let us know what pot holes we can fill or what roads we missed in mapping out the way."

 • National Coalition for Cancer Survivorship
"The National Coalition for Cancer Survivorship, the only patient-led advocacy organization working on behalf of people with all types of cancer and their families, is dedicated to assuring quality cancer care for all Americans. To the nearly 9 million cancer survivors in America today, NCCS is their voice on Capitol Hill and a reliable source for information, programs and resources on cancer survivorship, the experience of living with, through and beyond a diagnosis of cancer. With 1.2 million Americans diagnosed with cancer and another 550,000 dying from the disease this year alone, our work is as important as ever."

Cancer / Survivor Discussion Forums

Association of Cancer On-Line Resources (subscription required)

 • Long Term Survivors List
Join the list and communicate with over 250 other cancer survivors!  Here you'll find understanding, support, health tips, commpassion -- and sometimes a bit of just plain passion -- about being a long term cancer survivor and all it entails. Billed as the "free online lifeline for everyone affected by cancer and related disorders", ACOR has many lists, covering a wide range of cancer-related topics. "The heart of ACOR is a large collection of cancer-related Internet mailing lists, which delivers over 2 million e-mail messages each week to subscribers. In addition to supporting the mailing lists, ACOR develops and hosts state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their illness."

 • Wilms-Kids List - Children with Wilms' Tumor - as of September 2001

Recommended Books

 • Childhood Cancer Survivors: A Practical Guide to Your Future
by Nancy Keene, Kathy Ruccione, Wendy L. Hobbie
(ISBN: 1565924606)
Recommended by numerous cancer survivors... the first of it's kind!

 • Fighting Radiation and Chemical Pollutants With Foods, Herbs and Vitamins: Documented Natural Remedies That Boost Your Immunity and Detoxify
by Steven R. Schechter
(ISBN: 1878412043)
My review of this book

 • Nutrition Almanac
by Gayla J. Kirschmann; Kirschman; John D. Kirschmann
(ISBN: 0070349223)
Excellent basic reference book for nutritional questions and study.  Extensive information on individual nutrients, illnesses, food groups, stages of life, and more.  A must reference for every home!

 • Smart Choices in Alternative Medicine
by Better Homes and Gardens
(ISBN: 0696209624)
Well-researched and -balanced basic reference book explaining various therapies which are considered alternatives by the general medical community, and yet are welcomed and trusted by many. Lists the pros and cons of each. A help to finding therapies which will complement your own needs and life style.

Links to Information and Articles on Late Effects of Treatments and Current Studies

 • Pediatric Cancer Survivors: Assessment of Late Effects
"The possibility of experiencing no late effects from cancer treatment is nearly impossible, but the possibility of experiencing slight late effects is good if a thorough assessment and competent care are provided."

 • Handbook for Parents: "The Side Effects of Cancer Treatment"

 • Pediatric Oncology Resource Center -- Survivor Issues web page.
(An excellent source of information and links for all kinds of information for long-term cancer survivors.)

 • 2003 research grant:
"Late Effects in Wilms Tumor Survivors and Offspring" (The International Cancer Research Portfolio (ICRP)is a database of cancer research funded by US and UK organizations.)

 • President's Cancer Panel:
"The President's Cancer Panel is an advisory group established by Congress. The Panel reports directly to the President of the United States on progress and problems in the Nation's effort to reduce the burden of cancer." Part of the National Institutes of Health